Monday, August 8, 2011

Monster...how should I feel


"His little whispers.
Love Me. Love Me.
That's all I ask for.
Love Me. Love Me."
Monkey had his MRI and EEG to check the brain pressure. When you know you have to explain something to kids, you immediately worry how you will do it without scaring them. I could not imagine how on earth I would explain this one, "so they are going to put a ton of wires on your head and you need to sit still for an hour while the machine makes a ton of noise and no you do not look like a monster..." The DR says to just explain it in a way he will understand. So, I tell him we are going to see HOW BIG his brain is because he is so smart and that it is like America's Next Top Model for his brain. It worked. Loving him is all he asked for...

"He battered his tiny fists to feel something.
Wondered what it's like to touch and feel something.

Monster."
should I feel?
Creatures lie here.
Looking through the window...
That night he caged her.
Bruised and broke her.
He struggled closer.
Then he stole her.
Violet wrists and then her ankles.
Silent Pain.
Then he slowly saw their nightmares were his dreams.

His IQ is 62. Severely mentally retarded or as the new term in 2011, "Intellectually disabled." Excuse my language but GTFOHWTBS! Eating dinner the other night, Monkey tells me that we need "bug repellent." I ask him what he means and as serious as they come, "the stuff that keeps the bugs away hello?" I do not have a PH.D. or a Masters or even an A.A. for that matter, but I can tell you that regardless what they label him as, he is amazing. There are days where I wonder how I will keep up with him and that I will need a tutor to help him as he starts 2nd grade in two weeks. A new venture we are told he would never see... 
This child, never asks for anything. He is never ungrateful. He thanks me for reading him bed time stories. He pulls the chair out for me, carries in the garbage cans and tells me I'm lovely. He did steal me, my heart, my soul, my entire being...


As his face grows, and his forehead does not, even with wires streaming out,  he is not a Monster. He is Monkey and he is mine <3